March 7, 2023, Rob Riley Bicuspid Aortic Valve - Nationwide Children's Hospital The risk of BAV in children of parents with BAV is probably about 10%. Maybe a genewho knows. Im not sure theres enough information at hand to offer sound advice. The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. I just want to know what things I will see change so that I dont look past the change in my valve and miss my window to get the valve replaced. We also sign a school waiver every year. When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. I ran a 1/2 marathon 4 months after my surgery and have been since training for the Philly FULL marathon, which is tomorrow. Im a 44 year old male. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. Maybe thats not surprising, given that Im a heart surgeon and that many individuals with BAV need operation at some point. Is this the case? California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. 1. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. He has stenosis and moderate regurgitation. I have question about your opinion about aortic valve regurgitation (no BAV) Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve A few hours after helping the woman, she began to experience chest aches, soreness in both arms, nausea and clammy skin. More on Athletes and Bicuspid Aortic Valve (BAV) - Athlete's Heart Blog Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. He has been restricted from playing contact sports since hey was 10. I am playing basketball I am doing 100m and 200m and swimming . document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. Barbara Walters Prepares for Heart Surgery - ABC News that suffer from heart valve disease along with a link to the reference story about heart valve disease and their Twitter handle to tweet on and promote the Valve Disease Day. How a Fitness Trainer Manages Bicuspid Aortic Valve Disease - Men's Health Routine endocarditis prophylaxis is . The doc says the big risk is due to the blood thinners. I have an OnX mechanical valve. His doctor said his heart look very healthy and no other issues. I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. Holding breath during lifts valsalva). Hey would like to continue to be active but is worried about which procedure would be best for him. Since then I completed several 10k races and one half-marathon. "Until then, stay close.. It sort of flutters open and shut. This have affected my son psychologically since he loves playing soccer what should I do. Schwarzenegger's Aortic Valve Replacement | MedPage Today My consultant informed me that, because of my age, I would have a mechanical valve fitted which meant that I would be on warfarin for life and therefor not be able to play football. I am a marathoner with BAV and no other cardiac issues. Today, echocardiography (ultrasound) for screening or diagnostic purposes for some other heart problem is the most common way that BAV is detected. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. My surgeon says that the aneurism and bav go together. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. The exact cause of aortic enlargement in patients is not known. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American Heart Association to raise awareness. I am healthy, strong, and active. Good to hear that youre making a good recovery from your second operation. I am a 23 year old male, have BAV with mild AR. Im a 57 year old male who had aorta repair and porcine valve surgery 3 years ago. For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. Likewise, if I did a 60kg bench press I could easier than say an 18 year old girl started at the gym tried that, they would have to strain beyond belief. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. Starnes implanted a healthy human tissue valve and said at the time, This will not limit Arnold Schwarzenegger in any way when he recovers.. It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . I was to the understanding that the aneurysms caused in bav patients was due to the problematic bav valve causing uneven blood flow to cause uneven pressure on the aorta. I have a few questions because I was instructed not to lift more than 10 lbs and that I could resume surfing in a year. For example, are there data that shows what happens to aortic diameters once sports have been stopped? Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. That said, guidelines from the 36th Bethesda Conference suggest that BAV, without enlargement of the nearby aorta or problems with the aortic valve, shouldnt preclude any sports activities.including weight lifting. I have read that strength training is beneficial for heart health. I feel as though Im recovering well and, having no other conditions or comorbidities, rapidly. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. I am an amateur runner, I do not participate in competitions. Tetyana. Yes, moderate aortic root dilation can remain stable. The lines are the edges of the valve leaflets that open and close to let blood through. I dont know about the relative effectiveness of various ARBs used for this purpose. enlarged LV = 350ml I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. They wont repair my aneurysm unless it was 55mm during surgery or 60mm before surgery. He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. I wish you both all the best. Individuals with BAV can develop progressive narrowing or obstruction of the valve, leaking of the valve, and . Baldwin Publishing, Inc. strongly suggests that you use this information in consultation with your doctor or other health professional. Im 39 also diagnosed with BAV when I was 31. I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. I have been factual with him and told him worst case scenario is he is done with both and have pushed him to see the positives of exploring other things to do. Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. Hi Dr. Creswell. My cardiologist (whom I trust) said to keep working out like I always have (good news for me). Thank you very much for your answer. Given my age and activity level, do you think it would be beneficial, or even prudent, to explore a valve repair surgery as you described above? The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. Dear Dr. Creswell, There, they detected I had a bicuspid aortic valve." This meant the valve which controls the flow of blood from the heart's left-ventricle chamber to the main artery had only two flaps instead . Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. I would like to get back into it, but obviously I have been having some concerns. All rights reserved. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. While i appreciate you are not my cardiologist and we`ve never met is there anything generic out there that i can look at to gain an idea. I had a Medtronic Freestyle valve fitted in May 2002, did exactly as directed regarding exercise etc. That said, the recommendations dont address WHEN that screening should occur. You could probably settle on a plan for return to exercise with your surgeon and cardiologist. I first wrote about BAV in a short post here at the blog back in 2009. Regards I would defer to Dr. Dietz since youve already contacted him. Get on with it. They included a web link to the European medical guidelines. As a result, the valve doesn't function perfectly. We were to see them in 3 months. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). Like you point out, its always wise to be vigilant after surgery for things that might be amiss.and get checked out. Thanks very much for this Dr, it is really helpful to get someone elses opinion on the subject and Ill definitely raise those points with my cardiologist next time we meet. It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. Data from these studies supported the U.S. Food and Drug Administration's approval of TAVR for low-risk individuals - replacing a narrowed aortic valve through a small incision in a procedure . Parenthetically, it may be time for an update. running? Unfortunately, I really cant point you to such studies. The plasma volume and the heart rate increase, while the systemic vascular resistance decreases throughout the first trimester and plateau about halfway through pregnancy [10]. 2. Bicuspid aortic valve can be found in 1% to 2% of the general population . Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. I appreciate your input. I had a Bentall with mechanical valve done in Feb 2017. Because BAV may be an inherited condition, Athletes with BAV, no significant valve stenosis or regurgitation, and an aortic diameterless than 4.0 cm can participate fully in their sport(s), Athletes with BAV and enlargement of the aorta to between 4.0 and 4.5 cm can participate safely in only low and moderate intensity sports (this would. To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. Perhaps you could organize such a visit for a 2nd opinion regarding safe levels of exercise? Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. Thank you very much for your thoughtful response. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. The readers here would love to hear back from you as you work through this. No pulmonary hypertension Willie Moses My sinus of valsalva is at 4.8 and my BAV is functional (discrete regurgitation). Hi dr. Dietz?) If he is a candidate for valve replacement are these sports he could ever return to In the best case scenario? But if you have a bicuspid aortic valve, you only have two cusps. Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." That is someones life.. I dont doubt there is variability in recovery among athletes who have operation for AVR and aortic replacement. 1, 2 Much of the data relating to its complications derive from necropsy studies since reliable . Aortic stenosis will limit athletic performance at the top end. My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. This content can also be viewed on the site it originates from. I started experiencing palpitations last year along with several instances of light-headedness. What is a TAVR? Bicuspid Aortic Valve This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. Negative Stress Echocardiography While I do not work out regularly, my job as a construction worker is somewhat strenuous. Most patients spend about a week in the hospital after operation and then are able to go home. A CT scan made the diagnosis. It sounds like youre off to a good start with your recovery. Im paranoid to exercise too much for fear that I will do damage to the valve. after surgery and was playing football again by September. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). These differences of opinion may be legitimate. You can see my post above, from 26th of april. Ive seen several cardiologist and they are divided in recommendations. 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). Related posts: I have 4 children and a great wife. No stenosis or regurgitation, aorta 27 mm at the time. Some good points there, Craig. I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. Aortic valve repair is sometimes possible. Got rheumatic heart disease in my childhood and now have fibrosis of the aortic valve with regurgitation (1-2), mitral valve prolapse with regurgitation (1-2) and tricuspid valve regurgitation (1). I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. I continued playing hockey routinely until I was in my late twenties. Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. Thank you to every doc and nurse on my team!". In January 2021, she underwent open heart surgery to install an aortic valve. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. I know they really should get checked, and they will. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. A 2019 report suggests that bicuspid aortic valve disease is the most common congenital heart valve problem, affecting between 0.5 and 2 percent of the general population. Index to blog posts and online articles, Filed Under: Heart problems Tagged With: aorta, aortic aneurysm, arotic valve, bicuspid aortic valve, congenital heart disease, heart, heart surgery. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. They all underwent aortic valve replacement. I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. Business, Economics, and Finance. From your reading, or even just here at the blog, youll know that its not an unusual story. Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfanss syndrome. Or its the result of the cumulative effect of the aortic and mitral valve leakage? Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. It may cope adequately for a few years if the person leads a sedentary life, but the longer crucial surgery is delayed, the more damage there will be to . no tiredness, no dizziness, etc. Be specific. And my doctor do not give me responsive and exact answer to my questions regarding sports. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. I am a 36 yo male who was first diagnosed with BAV at the age of 17. Aortic enlargement in patients whove had valve replacement for BAV can be a vexing problem. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . Finally some solid information about exercise and life post AVR, thank you very much for that. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. But, three heart valve surgeries! Or, is it something that can wait until they get sports physicals in their teens? Is it possible that the valve will get loose? With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? Jansen Panettiere Family Reveals Actor's Cause Of Death ), Your email address will not be published. Dwayne E. Russell Those figures are funny to me because before I was doing three or four times more intense training beside my job (air force pilot). Normal great vessel size I exercise, eat well and keep my weight down. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. No other issues. I was just curious if there any way to know if my valve is affecting my times at all? I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP).